Latest News

Darren’s Fundraising challenge

  • Darren and Jayne, with lots of support from many of you, have been busy fundraising over the summer. The Just Giving site has been extremely busy and as a result has now reached an incredible total of £35,973 as of 28th Sept 19, this is approximately 9 months since launching. Jayne and Darren  would like […]

Phase 1 GDNF Trial

  • I would like to draw your attention to a donation of £500 made on the Just Giving Page from Tricia Hembrough. Tricia contacted me the week before last through a guest from our summer event. I was overwhelmed to hear that she is the widow of phase 1 participant, Richard Hembrough! I was fascinated to […]

Receiving Unlicensed Medicines on Compassionate Grounds

  • Message from Jayne – Coordinator for the Phase 2 GDNF Participants I happened across an eminent Consultant while visiting Southmead Hospital very recently and asked the question, “am I crazy to pursue my dreams to get GDNF delivered to the Phase 2 participants who may still want it under compassionate grounds?” The consultant told me […]

GDNF: The Ongoing Controversy

  • GDNF has been hailed as a potential breakthrough for Parkinson’s ever since it was discovered in 1993. In the lab, it was shown to bring dying brain cells back to life and it has proved to be particularly effective on dopamine neurons, the ones lost in Parkinson’s. However, the intervening years have seen the drug […]

Some interesting facts about Parkinsons…

  • Parkinsons develops when cells in the substantia nigra part of the brain start to die. These cells produce dopamine which helps the brain to control movement. It is the loss of dopamine which leads to the typical symptoms of the condition. Every hour 2 people in the UK are told they have Parkinson’s Around 145,000 […]

Participant Involvement

  • Reaching out to local branches and communities I have spoken to local Parkinson’s branches from Lytham St Annes in Lancashire to Bradford on Avon in Wiltshire about my experience of living with the condition and taking part in the GDNF clinical trial. The warm and enthusiastic welcome I have received, without exception, has been completely […]

Professor Steven Gill

  • Huge congratulations to Professor Steven Gill on receiving the Lifetime Achievement Award: The future and challenges of direct drug delivery to the brain – from the European Association of Neurosurgical Societies We owe so much to this incredible man and his beliefs

Snooker City Fundraiser

  • Julie Mackie and Mike Smith. Thank you for organising the outstanding Cabaret and Disco Night held on Sat 26th October. Oh what a night!!! We were overwhelmed by your fabulous efforts! Much gratitude should go to your families and all your friends for their contributions ! An amazing £6,150  was raised from ticket sales and […]

Grierson British Documentary Award goes to “The Parkinson’s Drug Trial: A Miracle Cure?”

  • Absolutely thrilled to announce that “the Parkinsons Drug Trial – A Miracle Cure?” won at the Grierson British Documentary Awards under the heading of Best Science Documentary. The Grierson Awards Ceremony was held in London on Thursday 14th November at the Queen Elizabeth Hall, see the video below of the finalists and acceptance of the […]